I hope everyone had a lovely weekend! Ashley was able to come home from the hospital Friday night. She is doing remarkably well. In fact, I don’t think you’ve ever seen a happier little girl. Before checking out of the hospital, I had a conversation with her Fellow that brought me to tears. Some of you may know that when Ashley was diagnosed, her prognosis was very bleak. We were told that the chances of her surviving until her 3rd birthday were somewhere between 5-7%. We were even given the option to not treat her. I’ll never forget the days that followed and the desperate urge that I felt to want to take her away to a happier place to create lasting memories. If tomorrow was not promised, then surely we would make the most of today. When she began treatment, there was one standard treatment protocol for her type of cancer. Within a month, Dr. Morgan approached us because a new treatment protocol had come on the horizon. It was still in the early stages, but already appeared to be much more promising. That moment, that decision would change everything. The progress of science is a miracle unto itself. It turns out that the former standard treatment protocol is no longer even an option due to the fatality rates. Ashley’s case was recently re-presented at tumor board because of how well she has responded to treatment. No one expected her to do this well. As much as I desperately wanted to believe she would be okay, I don’t think my heart let me believe it until she made it through radiation. Dr. Chibuzo said that going forward all children who aer being treated for the same type of cancer that Ashley has will receive “Ashley’s protocol.” Her case will also be written up in medical journals. I didn’t even have words at the end of that conversation. I was barely able to muster up a “thank you” to which Dr. Chibuzo responded “No, we have Ashley to thank because she will save the lives of other children through her bravery and courage.” She goes in for scans tomorrow and then we have chemo again next week. Please keep her in your prayers and thank you for your continued love and support!
Jun
01