Just a quick update to let everyone know that Ashley came home on Friday. With her came a lot of new medical equipment. She’s on oxygen and and she’s connected to a drainage pump for the fluid that builds up around her lungs. She’s full of smiles and giggles throughout the day, but more often than not she’s just tired. Our main focus is now on keeping Ashley as comfortable as possible and keeping things as normal as we can for Lindsey. We want the girls to enjoy every moment they have together and with this in mind we hope everyone understands that we’d prefer not to have any visitors at this time. We are so thankful for all your love, support and continued prayers.
I had hoped to post a more cheery update between my last one and this one, but alas time got away from me. When we found out just before Thanksgiving that Ashley had relapsed, needless to say, we were devastated. I think I walked around in a catatonic state for days, alternating between feelings of numbness and despair.
Thankfully we were able to take some time to get away over the holidays. I hope to post some pictures for you soon.
This past weekend as we were still recovering from the holidays and our travels, we noticed that Ashley was really lacking energy and had little interest in playing. On Monday we decided to take her to the hospital and after an assessment by her oncologist we realized that her disease had progressed. Ashley is in the hospital now and will be there for the rest of the week. We’re working with her doctors to keep her comfortable. Some of the measures being taken now are really only ‘band-aid’ remedies for a disease that obviously isn’t treatable with band-aids, but our overriding goal is to keep her comfortable. I’ve said this before, but it bears repeating. I’m eternally grateful for all the wonderful people who have come to be a part of Ashley’s life. From her preschool teacher, to her home nurse and all the nurses at CMH, we are truly blessed to have these remarkable people in our lives.
Thank you for your continued love, prayers and support.